This week's readings focused on the interaction between disability and technology -- and, ultimately, the subjective perceptions that ensue either on the part of the disabled user or on the part of those witness to the interaction. How does technology shape the disabled individual's personality and body? How does this
cyborgian process (of combining technology with the body) affect other viewers? The main thought circulating through each author's text is a call for more equality in terms of getting technologies to disabled users, appropriating technologies to fit each user's needs, and modifying the perceptions each of us has regarding disability (which, ideally, will assist the aforementioned steps).
The Cyborg ConceptOnce again this week we return to the concept of the "cyborg." Last week it was in the form of cyberfeminism, this week "cyborg" refers to a rather more literal melding of technologies and humans (when we use technologies to change our physical makeup, be it a wheelchair, crutches, glasses, et alii). Obviously, the more severe the disability, the more extensively one may incorporate technologies to assist in the "normalization" process; that is, to make the disabled person more independently equipped to participate in life processes, social interactions, and entertainment.
In their article "Cyborgs and Stigma: Technology, Disability, Subjectivity," authors John Cromby and Penny Standen talk in depth about the process of combining technologies and the disabled, and the perceptions created therein. Importantly, the authors take the step to define what "cyborg" means in the context of their research. They offer up three crucial views of the term, the first being that "'cyborg' is used as a metaphor in order to gain political and conceptual leverage in debate," second they state that it "can refer to the transformation of subjectivity by the array of communication technologies currently available," and, lastly, they define it as a way to "refer to the physical augmentation of the bodies of people with and without disabilities" (Cromby & Standen, 97). The latter definition is the most obvious one. When a lot of us consider the term "cyborg" we think of a Terminator or RoboCop type character (monster?) that can either obliterate a population, or save it from an equally perilous situation (as Thoughtware.TV contributor
Anders references in his video essay "On Disability, Adaptive Technology And Cyborg Societies"). Cromby and Standen's second definition, focusing on the subjectivities of communication technologies, is perhaps the most unique and informative take on this topic of disability. In fact, the authors go on to state that, "These last two uses of the term 'cyborg' reflect a useful classification of technologies for people with disabilities, since these can be said to fall into two broad classes: physical prosthetics which augment their bodies, and communication devices which extend their subjectivities" (Cromby & Standen, 97).
The authors go on to address the history of subjectivity, in a way, by discussing
German Critical Psychology and its reasoning which describes "how subjectivity is structured by possibilities" (Cromby & Standen, 98). By this, the authors are suggesting that "need itself arose as a consequence of social organisation... subjectivity is simultaneously biological/organic and societal, since the... nature of the possibilities available will strongly condition the subjectivity which emerges" (Cromby & Standen, 99). In other words, technology changes the world view, and the world's view, of a person with disabilities. For example, the notion of contradictory technologies that can create dependence in its user (the disabled, arguably, have the ability to become dependent on technologies to improve their quality of life even more than others find themselves more
needlessly dependent on "comfort" technologies), and the fact that assisted technologies can, while solving mobility or accessibility issues, create other problems (like a wheelchair that eliminates the activity of the leg muscles which can then cause atrophy). It becomes important, then, to study and ask the end-user what technologies are most important and how they should be used. Usability becomes a major factor in the melding of technologies with the disabled -- just as usability is a factor in less transformative (cyborgian) technologies as I've discussed in previous responses. It is crucial to know how a technology is used and what goals are required of it by its user -- surprisingly, this is so often a fleeting, or virtually nonexistent, stage in the globalization of new technologies.
Disability and a Link to PovertyAuthors Jim S. Sandhu, Ilkka Saarnio, and Ronald Wiman, in their article "Information and Communication Technologies and Disability in Developing Countries," link disability and poverty. It's a commonsensical stance that is easy to follow: disabled people have fewer accessibility options, therefore the opportunity for education and occupations is hampered. This is nowhere more evident than in developing countries where much of a person or family's income is based primarily on hard labor -- clearly, those physically disabled in such a way that aren't able to participate in labor are further stricken into poverty. Countries without access to communications technology, such as computers and other forms of information media (the types of technology that can help disabled people communicate with those in their immediate environment), don't have as much access to education resources -- therefore these areas deprive people of their voice and their ability to hear other voices from around the globe. As Cromby and Standen point out in their article by paraphrasing Eric Hobsbawm, "there are more phone lines in Manhattan alone than in the entire continent of Africa... two thirds of the world's population have still never even used a telephone, never mind a computer" (Cromby & Standen, 97).
Sandhu, Saarnio, and Wiman define disability for us as a "collective responsibility of society at large to make the environmental and attitudinal changes necessary for the full participation of all citizens in every area of life" (Sandhu, Saarnio, & Wiman, 2). This is the resounding call of their essay; to provoke an
"attitudinal" change within society, which, most of the authors admit, has been taking place over the last several decades with fresh mandates, laws, and policies by many national governments to increase access and accessibility not only in the purely physical sense (i.e. ramps into buildings) but also in an intellectual, or usability, sense (i.e. access to software and computers).
As I have discussed in previous responses on this blog, there is a "digital divide" between those who have access to information technologies and those that do not have access (or have severely limited access). Sandhu, Saarnio, and Wiman address this divide which plagues massive segments of society even in "developed nations" that have access and even create abundant and diverse resources. However, the authors modify the digital divide from the commonly viewed "horizontal" divide between cultural, ethnic, and geographic groups to include the "vertical," which would address the
divide within the divide -- that is, people who, because of their disabilities, even if able to come in contact with current communication and information technologies, cannot
access that technology because of physical or intellectual impairment (Sandhu, Saarnio, & Wiman, 8). As societies make progress to include the excluded segments into the use of information technologies, we must also make simultaneous steps to ensure that no one will be at a disadvantage when they receive access. We must include
accessibility with the access -- we must make efforts to modify existing technologies to allow disabled users the ability to learn and communicate equally.
The Art of DisabilityIn her essay, "Artists with Disabilities: A Cultural Explosion," author Pamela Walker brings to light the divisions within the art world by addressing Disability Culture and the need to make subjective steps on both sides of the aisle (those {dis}abled). Walker's first-person perspective is refreshing to read -- from her personal history growing up as a disabled student (the the lack of accessibility during that era) on to the present era of Disability Culture: "The 1970's brought a new approach to being disabled: disabled people became empowered and realized that they did not have to just accept and cope with inaccessible situations -- things could be changed" (Walker). Akin to the book I addressed in my Week 8 Response,
Global Indigenous Media, Walker mentions the use of media to essentially
rebrand the image of disabled persons. By taking control of medias (much like the indigenous peoples addressed in the aforementioned book) she asserts a need to get "actively involved in making our own images" (Walker). Her use of the term "images" is, I think, twofold, insofar as it refers to the perception by many of disabled persons (as well as a disabled person's perception of him- or herself and other people in a similar situation) in addition to the aspect of art that Walker, an artist herself, incorporates in her thesis.
In direct commentary on disabled artists, and in an effort to define Disabled Culture, Walker makes the enlightening distinction:
The observer of disability art has a interesting challenge: they can focus on the disability and think it's incredible that the person has done what they have done, or they can focus on the art and see how the disability has flavored it, or they can become familiar enough with the disability that it becomes only background and the art is the message. (Walker)
This moment in Walker's essay is, I think, a brilliant and necessary revelation. There is a peril in exhibiting art as that of a "disabled artist" -- Walker cautions that viewers (or
beholders, as in Wolfgang Kemp's Receptionist theories of art history) may acutely fixate on the fact that it is, in fact, created by a disabled person and should therefore be viewed and judged in a realm separate from "able" artists. This is hardly what either party (the disabled artist or the viewer) wants. There is a choice, then, on the part of the observer (the viewer, the beholder) which takes place in the stage of reception which dictates how that observer reacts to, values, and analyzes a work of art which must, I feel, simultaneous embrace the disabled aspects of the artwork (that is, if the artwork conveys a message of Disabled Culture or disability in a more specific sense) and/or evaluate the artwork as completely separate from the disabled artist. If the artwork does not specifically set out to comment on disability in its content, how is it appropriate to think of the art in the context of disability?
Citations
Cromby, John and Penny Standen. "Cyborgs and Stigma: Technology, Disability, Subjectivity."
Cyberpsychology. London: Routledge, 1999. Print.
"On Disability, Adaptive Technology And Cyborg Societies." Thoughtware.TV. http://www.thoughtware.tv/videos/show/1121-On-Disability-Adaptive-Technology-And-Cyborg-Societies
Sandhu, Jim S., Ilkka Saarnio, and Ronald Wiman. "Information and Communication Technologies and Disability in Developing Countries: A Technical Note." October 2001.
Walker, Pamela. "Artists with Disabilities: A Cultural Explosion." National Arts and Disability Center. University of California, 1998.